Best of Journal of Nursing Scholarship - World Health
A Blueprint for Genomic Nursing Science
Genomic Nursing State of the Science Advisory Panel, Kathleen A. Calzone, Jean Jenkins, Alexis D. Bakos, Ann K. Cashion, Nancy Donaldson, W. Gregory Feero, Suzanne Feetham, Patricia A. Grady, Ada Sue Hinshaw, Ann R. Knebel, Nellie Robinson, Mary E. Ropka, Diane Seibert, Kathleen R. Stevens, Lois A. Tully, and Jo Ann Webb
Kathleen Calzone, PhD, RN, APNG, FAAN, is a Senior Nurse Specialist, Research in the Genetics Branch of the Center for Cancer Research at the National Cancer Institute. She is credentialed in genetics by the Genetic Nursing Credentialing Commission and is a Fellow of the American Academy of Nursing. Dr. Calzone is a former president of the International Society of Nurses in Genetics. She is also the co-chair of the Genetic/Genomic Nursing Competency Initiative which established the Essentials of Genomic and Genomic Nursing: Competencies, Curricular Guidelines, and Outcome Indicators, and the Genomic Nursing Science Blueprint. She is widely published in the field of genomics.
Dr. Jean F. Jenkins is a Clinical Advisor, Genomic Healthcare Branch, Division of Communication, Policy, and Education, NHGRI, NIH. Previously, she worked at the NIH Clinical Center Nursing Department and the National Cancer Institute. She received her B.S.N. from the University of Maryland, M.S.N. at Catholic University of America, and Ph.D. from George Mason University. Dr. Jenkins provided leadership in the development of National Coalition for Health Care Professional Education in Genetics core competencies. Building on these efforts, she co-coordinated the development of the Essential Nursing Competencies and Curricula Guidelines for Genetics and Genomics leading to the development of an interdisciplinary education resource repository (http://www.g-2-c-2.org/) and a web-based case-scenarios resource (http://www.g-3-c.com/). She has > 130 publications including three Journal of Nursing Scholarship series on genomics (2007; 2011; 2013).
Ann K. Cashion, PhD, RN, FAAN, is the Scientific Director of NINR’s Division of Intramural Research where she participates in the overall leadership of NINR. Previously she was a Professor and Department Chair in the College of Nursing, University of Tennessee Health Science Center (UTHSC) where she taught genomics and mentored students. Dr. Cashion has explored the use of biomarkers’ to predict clinical outcomes for over 15 years. Her previously funded research targeted genetic/genomic and environmental components associated with outcomes of organ transplantation. She continues to combine emerging omic technologies and behavioral questionnaires in her research. Dr. Cashion has over 45 publications, serves as a scientific reviewer, and is an active member of the Institute of Medicine Translating Genomic-Based Research for Health Roundtable. Dr. Cashion received her BSN from the UNC-Chapel Hill, her MNSc from the University of Arkansas for Medical Sciences campus, and her PhD from the UTHSC.
Nancy Donaldson, Clinical Professor Emeritus, University of California San Francisco School of Nursing, was Founding Director, Center for Nursing Research & Innovation, UCSF School of Nursing (1999-2011). From 1996-2013, Donaldson has served as Senior Scientist/ Co-Principal Investigator for the Collaborative Alliance for Nursing Outcomes Project (CALNOC), a nursing quality measurement research and benchmarking registry and served as founding Chairman of the CALNOC Corporate Board of Directors (2009-2011). A leader in nursing quality measurement, nurse staffing effectiveness and clinical patient safety, Donaldson was funded by AHRQ and HRSA from 2001-2005 as a patient safety investigator and PI for the UCSF RWJF INQRI Study. Dr. Donaldson served as a member of the U.S. Agency for Healthcare Research & Quality (AHRQ) National Advisory Council (2009-2011) and served, from 2001 to 2008 on the AHRQ Patient Safety Research Coordinating Center Steering Committee. Donaldson now serves on the NQF AHRQ Common Formats Expert Panel.
Dr. W. Gregory Feero obtained his M.D., Ph.D. from the University of Pittsburgh School of Medicine with a Ph.D. in Human Genetics. He then completed his residency in Family Medicine at the Maine-Dartmouth Family Medicine Residency Program in Augusta, Maine. Dr. Feero is Research Director at the Maine Dartmouth Family Medicine Residency and is also affiliated with the Division of Cancer Control and Population Sciences of the National Cancer Institute. Dr. Feero also serves as a consultant to the Jackson Laboratory on education issues, is an Associate Editor for the Journal of the American Medical Association, and serves on the Institute of Medicine’s Roundtable on Translating Genomic-Based Research for Health. Dr. Feero is board certified in family medicine and holds licenses in Maine and West Virginia. He has authored numerous peer-reviewed and invited publications.
Under Dr. Patricia A. Grady’s leadership at NINR, the Institute has more than doubled its budget and significantly increased the number of research and training grants awarded. Dr. Grady has initiated several major NINR research programs: end-of-life, self-management of chronic illness, health disparities, and genetics. Dr. Grady serves as a co-chair to both the NIH Roadmap Committee on Research Teams of the Future and to the NIH Public Trust Initiative, as well as co-chairing the Trans NIH Pain Consortium. She has also strengthened interdisciplinary collaborations across the NIH campus and around the country. Throughout her tenure as Director, Dr. Grady has supported the development of infrastructure and research and training opportunities for new researchers, including development of the NINR Summer Genetics Institute (SGI), designed to expand competency and foster interest in genetics and related research.
Ann R. Knebel, PhD, RN, FAAN, is the deputy director of the National Institute of Nursing Research (NINR), National Institutes of Health. Prior to joining NINR Dr. Knebel served as deputy director for the Office of the Assistant Secretary for Preparedness and Response (ASPR) at the U.S. Department of Health and Human Services. At ASPR Knebel applied her scientific expertise to preparedness planning and surge capacity initiatives. Knebel's past experiences include serving as an NINR extramural program director and as a program analyst in the NINR Office of Science Policy and Public Liaison. She began her NIH career as a pulmonary clinical nurse specialist at the NIH Clinical Center, where she conducted research on illness severity, quality-of-life. Knebel has received numerous awards and special honors, including the NIH Clinical Center Distinguished Nurse Award and the Hubert H. Humphrey Award for Service to America.
Mary E. Ropka, Ph.D., RN, FAAN, is Professor Emerita of Public Health Sciences at the UVA School of Medicine. She received her PhD from the UVA in 1988, an MS from U Conn in 1978, and BS from Syracuse U in 1971. Mary’s academic career has been marked by a passion for building cancer-related clinical research programs and teams, and teaching research methods and evidence-based practice. An interdisciplinary approach has been a hallmark of her work. From 1988-1992, Mary worked at the NINR to start its first Intramural Research Program. Supported by a number of different NIH funding mechanisms and RWJ, she conducted cancer prevention and control research in two main areas: (1) patient decision support and (2) cancer risk assessment and risk management. Through her research, publications and presentations, and international service activities, she contributed to improving cancer prevention and control and moving genomics into clinical practice.
Dr. Diane Seibert is Professor and Interim Dean for Academic Affairs at the Uniformed Services University in Bethesda, MD. She is a certified Nurse Practitioner, maintaining an active clinical practice at the National Naval Medical Center in Bethesda, MD. Dr. Seibert has published and presented widely in the areas of women’s health and genetics and is involved in several national task forces and committees working toward improving the genetics competency of the nursing workforce across all practice settings. Dr. Seibert is the co-chair of the Uniformed Services University Interprofessional Education and Practice Taskforce, has authored over 40 professional papers, books and books chapters; has given numerous national and international presentations; and served on editorial boards for referred journals
Dr. Lois Tully is a Program Director in the Division of Extramural Science Programs at the National Institute of Nursing Research (NINR) at NIH. She oversees a genomics portfolio that addresses the roles, interrelationships, or moderating influences of genes, environment, and behavior on symptom manifestation, disease risks, and patient outcomes. Dr. Tully additionally oversees a symptom management portfolio, which focuses on biobehavioral approaches to reduce or eliminate adverse symptoms resulting from chronic conditions. Prior to joining NIH, Dr. Tully was employed by the National Institute of Justice (NIJ) - the research arm of the U.S. Department of Justice – where she served as the Deputy Chief of the Investigative and Forensic Sciences Division and the Program Manager of NIJ’s Forensic DNA Research and Development Program. Dr. Tully holds a Ph.D. in Medicine with a concentration in human genetics, a Master's Degree in Forensic Sciences, and a BS in Medical Technology.